Partners & Resources
Services we trust
Spoons will only ever partner with services that genuinely serve the chronic illness community. No advertising. No data sharing. If we list something, it's because we believe in it.
Therapy & Support
BetterHelp
Coming soonLicensed therapists who understand chronic illness
Match with a therapist specialising in chronic illness, pain management, or health anxiety. Sessions by text, phone, or video — on your schedule, from your bed if needed.
We're in conversations. This will be updated when confirmed.
Condition communities & research
Spoon Theory
Christine Miserandino's original essay explaining how people with chronic illness manage limited energy.
Dysautonomia International
Research, advocacy, and support for POTS and other dysautonomia conditions.
ME Association
Support, information, and research for people living with ME/CFS.
Ehlers-Danlos Society
The global community for hypermobile spectrum disorders and EDS.
Long COVID Alliance
Accelerating research and support for long COVID patients globally.
Lupus UK
The national charity supporting people with lupus across the UK.
Patient advocacy & research
For people translating lived experience into policy and evidence.
EUPATI
European Patients' Academy on Therapeutic Innovation — free training on medicines development, clinical trials, and HTA from a patient perspective.
PCORI
Patient-Centered Outcomes Research Institute — funds comparative effectiveness research that matters to patients, caregivers, and clinicians.
IAPO
International Alliance of Patients' Organizations — a global network for patient organisations working on health policy and patient-centred care.
EMA Patient Engagement
The European Medicines Agency's framework for involving patients, caregivers, and patient organisations in the evaluation and supervision of medicines.
Caregiver Action Network
Supports the more than 90 million family caregivers across the US with education, peer support, and advocacy resources.
PatientsLikeMe
A network where patients share real-world health experiences to help themselves, each other, and researchers understand the patient journey.
Want to partner with Spoons?
We only work with organisations that genuinely serve the chronic illness community.
Get in touch