EDS

Has anyone tried specialist physiotherapy for hEDS?

Standard NHS physio made things worse — they had no understanding of hypermobility and pushed me to stretch and use resistance in ways that caused more subluxations. Finally got a …

Has anyone tried specialist physiotherapy for hEDS?

EDS-specialist physio (not standard physio!) changed everything. Learning to stabilise joints properly, understanding my hypermobility patterns, and finally having exercises that d…

Has anyone tried compression garments for EDS?

Compression has helped a lot with joint stability and the POTS side of my hEDS. Knee-high compression socks basically every day. The challenge is getting ones that don't dig in or …

For those with hEDS — what was the turning point in your physiotherapy? What made the difference between physio that helped and physio that made things worse?

What other conditions were you diagnosed with alongside EDS? I'm trying to understand how common certain comorbidities actually are.

Which joints give you the most daily trouble, and what's helped you stabilise or protect them?

Finding a physio who actually understands hypermobility

After seeing 4 physiotherapists who made my joints worse by stretching them (stretching! the thing you should never do with hEDS!), I finally found someone who understood. The sear…

Dislocations at night are ruining my sleep

My hips and shoulders sublux while I sleep and I wake up in pain constantly. A body pillow helped a little. Has anyone found a better solution? Bracing everything feels impossible.